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  • muscle cramping is cidp right?
    I have CIDP, and before being diagnosed I suffered leg cramps; usually when swimming After being diagnosed I was told the cramping was a symptom They stopped for a while after I began receiving IVIg infusions, but mysteriously started again when I was sleeping
  • Cidp - GBS|CIDP Foundation International Forums
    The worse of GBS is week 4 So by going back to get your nerves tested in a few months time is a good idea But in the meantime if you get worse please go get rechecked and get IVIG treatments I got CIDP in the fall of 2004 got my first 5 days of IVIG last summer and my second round of 5 days 3 weeks ago I hope you keep improving Sue
  • Vitamins and supplements for CIDP
    CIDP affects each patient differently If you have a slow onset CIDP it is possible that your body is very depleted in the building blocks necessary to repair your myelin I think some unorthodox experimentation with supplements might be necessary – to augment, not substitute the traditional approaches
  • Anemia Due To CIDP? - GBS|CIDP Foundation International Forums
    GH, CIDP is primarily an autoimmune disorder where antibodies attack the nerve fibers and cause neurologic damage The connection between CIDP and anemia is in the blood where lymphocytes (from the autoimmune system) no longer recognize “self” (thanks to CIDP) These lymphocytes then go on the attack to remove invading organisms from our body
  • breathing problems cidp - GBS|CIDP Foundation International Forums
    CIDP can affect the diaphragm that works the lungs I have times out of the blue I feel I can’t get enough air It’s me having difficulty getting a full deep breathe I feel it more in the summer when my body is overly tired and or from the heat There are many of us who have this unpleasant and sometimes scarey CIDP symptom
  • CIDP = Caused by the flu shot
    I had a very classic case of CIDP and was able to get diagnosed within 6 months and start IVIG so I didn’t have a lot of permanent damage to my nerves It was hard to convince my neurologist that the flu shot caused my CIDP but it was the timing that really helped him believe it was the flu shot Plus, I was perfectly healthy prior to the
  • Has anyone had normal protein levels in spinal fluid? - GBS\|CIDP
    Asymetrical appearance is a common symptom in cidp patients, symetrical is only in gbs patients Symetrical is also in cidp patients From the symptoms you have described, in my opinion you should have no problems with the insurance coverage, because it looks like typical cidp symptoms Keep a positive attitude and things will work out in your
  • CIDP and prednisone - GBS|CIDP Foundation International Forums
    Local pain doc tells me that from the records, I have CIDP My memory is that if you respond to prednisone, then you have CIDP However, I was also undergoing IVIG treatment in the first two months of prednisone Most of my improvement was during the IVIG 2-month period Four years later, I am about the same in terms of weakness




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