|
- Community Forums - GBS|CIDP Foundation International Forums
A place for forum uses to find help and support or to post comments and questions about the GBS-CIDP Foundation International Forums
- B-12 deficiency CIDP - GBS|CIDP Foundation International Forums
I was recently diagnosed with “B-12 deficiency” at the Baylor College of Medicine in Houston My initial diagnosis (from the EMG and nerve conduction) was CIDP Blood tests confirmed the “B-12 deficiency” diagnosis My treatment is intramuscular B-12 injections once every three months I have had three injections so far I was supposed to have seen some improvement weeks ago, but my
- Elevated Blood Pressure and Heart Rate after IVIG - GBS|CIDP Foundation . . .
Hello, Two weeks ago I received my first 3 IVIG loading doses for CIDP Although many of my symptoms have improved I have noticed that my heart rate and blood pressure are up from my longterm normal Can anyone tell me if this is something I should worry about or will it go away after a while? Thanks for your help, Petra
- Anemia Due To CIDP? - GBS|CIDP Foundation International Forums
GH, CIDP is primarily an autoimmune disorder where antibodies attack the nerve fibers and cause neurologic damage The connection between CIDP and anemia is in the blood where lymphocytes (from the autoimmune system) no longer recognize “self” (thanks to CIDP) These lymphocytes then go on the attack to remove invading organisms from our body
- electric muscle stimulation? - GBS\|CIDP
With CIDP you have probably lost the outer layer that protects your nerve As that layer deteriorates, and the muscle axons deteriorate, the end result is that there is no, or very little, ‘path’ for an electric stimulation to follow If you cannot solve the problem of muscle and nerve deterioration, sooner or later you experience muscle
- For those who get regular IVIG infusions, how often do you . . . - GBS\|CIDP
Just out of curiosity, for those who get regular IVIG treatments for their CIDP, how often do you get them? Once a week, once a month? Do you feel that such a maintenance keeps symptom free or something close to it? Thanks, Bryan
- Ocrelizumab - a breakthrough? - GBS|CIDP Foundation International Forums
CIDP occurs when the immune system attacks the protective sheath that covers nerve fibers, which is composed of a fatty substance called myelin Ocrelizumab treats the condition by depleting the B immune cells that produce antibodies to attack the myelin
- CIDP and facial mouth numbness
My case of CIDP involved recurrent relapses of the left 6th nerve causing double vision and weakness of muscles around the left eye and involvement of the trigeminal nerve, on the left side, which gave me a numb jaw, and left side facial muscles, a numb tongue, and some slurred speech
|
|
|